Meet Mighty Max.
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Meet Mighty Maxwell. One of the mightiest little guys. He even has his own website. Max was born two months early and diagnosed with a genetic disorder called CHARGE Syndrome (you can read more about CHARGE here). He spent the first six months of his life at Children's Hospital in Seattle. And he is the cutest little dude.
In traveling around the country and abroad I get the chance to meet so many amazing people. I am humbly reminded that everyone has challenges and success, that we are all oh so human, and that there are ways we can help each other out - sometimes in the simplest ways.
Max is the nephew of one of my favorite store owners, Elizabeth, from Treasury of Memories in Bellingham, Washington. The store also has a blog. One
of the special things that TOM does each year is host a 20 Hour Benefit
Crop. This year the crop is being held on March 31st, with proceeds
going to the "Mighty Maxwell Guild" supporting Children's Hospital and
Regional Medical Center's Uncompensated Care Fund (and gifts for
long-term patients and families). TOM's goal is to raise $10,000. For
more information you can call the store at 360-715-3125.
And, they sent me this cool shirt :).
And, thank you so much for all the awesome comments and support on the book. It is in the final stages of design right now - meaning it is all laid out and is being reviewed and reviewed. The hopeful availability time is June 2006. I am totally excited for it to become "real."
I am heading up to Portland tomorrow for the Creating Keepsakes Oregon Convention. Looking forward to catching up with lots of fun people.
Hope you all have a great weekend!
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28 comments
Yay for the new book Ali! Can't wait!! you rock. Awww... he's such a cutie!!
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Wow. Thank you for sharing that Ali. I've been a big fan of your creative style, and look forward to meeting you someday at some kind of scrapbook event in the Sacramento Valley (wink wink). Keep up the great work; you are blessed beyond belief!
Kimberly
my blog... http://runswithdecorativescissors.blogspot.com/
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He's so strong and god is with him =)
He is now my new heroe =)
And it's adorable
Dont give it up dude!
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I couldn't believe it when I Googled Charge syndrome tonight and saw Ali!!
My daughter Angelina also has Charge Syndrome. Being a former Scrapbook store owner myself, It is very rare to find another "CHARGER" yet someone in the Scrapbook world.
My prayers are with you Max and your family!!
Maybe we'll see you in Chicago at the Charge confrence this summer!!
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I couldn't believe it when I Googled Charge syndrome tonight and saw Ali!!
My daughter Angelina also has Charge Syndrome. Being a former Scrapbook store owner myself, It is very rare to find another "CHARGER" yet someone in the Scrapbook world.
My prayers are with you Max and your family!!
Maybe we'll see you in Chicago at the Charge confrence this summer!!
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